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Your Faces

Do you know what I thought about when I woke up in the Intensive Care Unit after 34+ hours of brain surgery?

Nothing really, but it’s what I saw that astounded me. For two days and two nights in the ICU, I saw nothing but the faces of people I loved on every wall, on every surface, in each fold of fabric. I saw my mother’s face in the stream of light coming through the door, the smile of a former student in the white sheet tucked over my arms, the flowing hair of a friend in the curtains, kisses blown to me from nieces and nephews from the ceiling tiles.

Of course I’ve heard of the way your life flashes before your eyes at the end, but this was not what I had imagined–there were no places, no events, no memories, no flashes of anything. The faces were like floating candles on a raft, carrying me safely to shore over a deep lake. And of course, there is the explanation that I was heavily medicated; I could label these images hallucinations and call it a day. But these faces were so clear and so specific to everyone I had ever met that I can’t dismiss them as such, so easily.

The day after my surgery, some of the finest neurosurgeons at Harvard and Mass General, Brigham Women’s Hospital and Dana Farber Cancer Center gathered together to review my case. They saw the images of the tumor in my skull before and after. They wanted to know how it was possible to remove so much foreign mass when it was tangled around the brainstem and almost every major nerve and artery. The surgeons asked about the neurological consequences of the operation. Their assumption was that there must have been some damage.

Can the patient breathe on her own? Yes.

Can she see? Hear? Think? Yes.

Can she walk? Yes.

This morning, my friend sits at the foot of my bed as I recover, reading to me from Facebook and my website the many comments I had not seen from the days around my surgery. “I was your student in 2006. I want you to know that I am holding you in light,” “I knew you at summer camp in 1985. I am praying for you,” “Your friends out west are imagining the tumor leaving you easily.” Tears filled my eyes as I understood exactly why I had seen an uninterrupted stream of faces when I awoke from surgery.

When the music of my inhales and exhales threatened to fade away to nothing and I felt the last page of the book of my life between my thumb and forefinger, I saw your faces. I saw the constellation of all of you who had carried me toward safety with your thoughts and prayers, lit candles, and ceremonies. You had a hand in this outcome. Do you feel the immensity of that?

I don’t pretend to understand the world. In fact, I am partial to its mysteries. I prefer to look about in wonder, to bow down in humility, and to kneel down in gratitude.

 

In A Dark Time the Eye Begins to See

So begins a poem by Theodore Roethke (pr. Ret-ke) that I used to teach. In a simple classroom on a farm in Vermont, we sat around a large maple table, reading the lines out loud together. We did this on the anniversary of 9-11. We pulled out the poem again when one of my students was paralyzed in a bike accident, and again when a faculty member’s brother died. It was a tradition born in the belief that poetry heals; it universalizes the human condition and gives specific language to feelings of sorrow that we share.

I’m thinking about this poem again because it is a dark time in America and across the ocean right now. Horrible shootings. Senseless, un-repairable bombings and violence. Politicians screaming offensive remarks, clouding the air with hatred. A people divided and afraid.

I know the purity of pure despair
My shadow pinned against a sweating wall—

I went for a run early this morning and a police car rolled up next to me in the dawn-dim light and I felt afraid. What was he going to do to me? I slowed down and let the car pass. A few minutes later, a young man was walking towards me. I felt afraid. Did he have a gun? I crossed the street and picked up my pace. Then I heard a deafening boom from somewhere off to my right. It was likely just a truck backfiring at a construction site, but I jumped. Both feet came off the sidewalk. I’m clearly on edge.

Plus, in my situation now, knowing that I have an extensive tumor threatening my brain stem and my ability to breathe, I can go to a dark place really fast. And I do. What if I don’t make it through the night? How will my daughter, who sleeps with me when she has nightmares, handle waking up next to her un-breathing mother? See, I told you I can go to a dark place, fast.

That place among the rocks, is it a cave,
Or winding path? The edge is what I have.

The thing is, I need to go to those dark places as part of the process. It doesn’t help to push those thoughts away – they just keep on coming back, knocking louder. So I am practicing sitting here in the dark, paying attention. It’s like walking in a forest at night without a flashlight and slowly letting my eyes adjust to the dark.

I also need to remember lessons learned from natural history. A deer, when it senses the presence of a mountain lion, jumps and runs away. Adrenaline pumping through her veins, she can move fast and far in just fifteen minutes. But then she stops running and stands still. She listens, and slowly relaxes. She lets her nervous system process the adrenaline and let it go. She stands there, licking the dew off the grass blades far from her fight/flight center where she was living just moments before. She recovers fully so that if the lion approaches again, she will be able to escape.

But in these dark times, we are living in our fear centers all the time. Our bodies can’t tell that there is no lion and that this is not, in fact, a case of life and death. We feel threatened, unsafe, out of control. And so our oldest protective fight/flight nervous system kicks in. The result is that we are trying to make decisions, parent, and live from the core of a nervous system that is only designed to help us for fifteen minutes, to immediately escape danger.

So what do we do? Step back and gain perspective. It’s been dark before. It will be dark again. We can still move forward in the dark. Ask the mothers of the middle ages. Ask the widows of the civil war. Ask the children of internment camps. Ask the young people of the late 1960s when we were caught in an endless stream of assassinations and war in Vietnam. Is this, now, really, the darkest time?

We have a tendency to imagine that the Golden Age is behind us, those days when people climbed hilltops to sit under trees and write poetry. Times were simpler, which must mean better than now. But is that really true?

Dark, dark my light.
A fallen man, I climb out of my fear.

This morning, I sit up in bed and close my eyes, letting waves of fear and emotion about my upcoming surgeries pass through me. I breathe and relax. What do I notice in the dark? I see that I have lived in fear for too long. I also see that I have counted on others to lead: politicians, lawmakers, and people I have deemed less-busy than me.

If it was clear before, it is vivid now. We need to step up. When my surgeries are behind me, I need to rearrange my days and devote at least 10% of my time to directly advocating for non-violence, for wild places, for gender equality, for gun-control laws. We’re sitting in the dark in our living rooms with the doors locked, when we should be sitting on our representatives’ doorsteps, saying we’re here to help you push peace forward.

And one is One, free in the tearing wind.

With my students, we used to linger on this confusing last line of Roethke’s poem, trying to make sense of it. This morning, I see the lowercase, singular “one” as me sitting in the dark, facing my personal fears. And I see the capitalized “One” as all of us. The way forward for me to heal is through the universal. We are all in pain and instead of just spinning in my own fears, I may as well show up and help others out. Maybe in the process of being in the dark together, we heal, and set each other free.
***

Terrorists or Neurosurgeons?

“You know what I think when I see a muslim man in the airport?” my husband Kurt asked me as we waited in the security line at the Phoenix airport. “What?” I looked around nervously, wondering where this might be going.

“Neurosurgeon,” Kurt said, and smiled.

Kurt and I have spent the last two weeks in airports and in doctors offices across the country. When I first received my diagnosis of a skull-base tumor, I called the only neurosurgeon I knew, Dr. Moustapha Abou-Samra, in California. He is an immigrant, the father of two of my former students, and a man I hadn’t spoken with in over 20 years. He was on vacation and yet he returned my call immediately. He took the time to walk us through the difficult journey ahead.

Three days ago we were in Boston because the leading world expert on skull-base tumors, Dr. Ossama Al-Mefty, an immigrant from Syria, had seen my MRI scans. He personally spent two hours with us during his dinner time, just to help us understand my diagnosis. Today we were in Phoenix, sitting for five hours in a packed waiting room at the Barrow Neurological Institute. The surgeon, Dr. Spetzler, an immigrant from Germany, had made an extra effort to see me; I would be one of 108 patients his team of surgeons would meet that day.

In the waiting room in Phoenix, there were large screen TVs on every wall, broadcasting the Republican National Convention and its theme, “Make America Safe Again.” The waiting room was quiet and tense. There was an older couple next to me. The man wore a US VET ball cap. He told me he was there for a check-up after a near-fatal aneurism. Dr. Spetzler had saved his life. It was hard to hear him when he spoke because the convention goers on the TVs were so ravenously enthusiastic about their candidate that the room seemed to erupt into Bieber-Fever shrieking every few minutes.

“We need a total and complete shutdown of muslims entering the United States,” Donald Trump has declared, and as I watched the convention, the speakers who seemed to get the loudest shrieks of approval were the ones who talked about the need to strengthen our borders. Our country’s problems are clearly the fault of those nasty, no-good immigrants.

Are these the same immigrants that are known for their expertise in solving complex neurosurgical problems? The ones who spend every waking minute dedicated to saving the lives of Americans?

We chose our surgeon, Dr. Ossama Al-Mefty, because of his unparalleled skill and experience, not to mention his complete devotion to caring for his patients, regardless of their background or religion. But hey, shut those borders down! We don’t need any more smart, dedicated people in this country.

*****

Brave Over Perfect

I come from a long line of strong women. My mother’s mother taught me how to hold a shovel, my father’s mother taught me how to hold a cigarette. People called me tough, independent, and smart. It was a great childhood, and for that I am truly grateful, but I was ultimately clueless when it came to making big decisions about relationships, love, work, and spirit. No one taught me how to be curious about my emotions (Why bother?) or how to take care of myself (Don’t be so selfish!). There were certain kinds of brave that I was good at: I could run up mountains and dive head first into giant waves. But there were other kinds of brave I needed to develop: how to stay true to myself in a crowd, how to face conflict, and how to keep trying when it doesn’t turn out perfectly.
The opposite of joy is not sadness, but perfectionism. When I am straining to do all parts of my life well with the hope that I will rise above confusion and criticism, that’s what I call perfectionism. The world doesn’t need us to be perfect, it just needs us to find the courage to contribute to the common good.
These strong women raised me to believe that I could be anything I wanted to be. But the way I internalized that message was that I must be great. And there were many times that I didn’t feel capable of being great and so I gave up. All I ever saw were the outer, perfect performances of women in my life: my mother, in a graduation gown, receiving her second advanced degree, and her friends’ immaculate homes and flawless appearances. I never heard about their inner conflict, so that when I encountered doubt or my own imperfections as the leader of a school, as the director of a company, and as a mother, I thought that the confusion I experienced was uniquely mine. I assumed everyone else knew exactly what she or he was doing.
You may feel that way sometimes, like you are not good enough, or brave enough, or that there is something wrong with you because you can’t keep up with the world’s expectations. There is nothing wrong with you. Just ask people of all ages for their stories. Then listen to the constellations of suffering and beauty that make up who we are.
In teaching adolescents for over twenty years, I have had the privilege of listening to their biggest questions and concerns. Here’s how one girl I shall call Annie sums up her experience moving through the maze of defining herself. “We are like glass lanterns. There is a bottom: we are lesser than—and there is this top: we better be perfect—and then there is this hollow middle with an elusive wick, waiting for us to strike the match.” Maybe you too were conditioned to be good at striving for the top, reaching for external goals and illusory perfection, but does it leave you feeling anxious and hollow?
As a teacher, I heard this question a lot: “Is this right?” “Is this answer on the test right?” “Am I doing this essay right?” I understood my students’ desire; I had spent plenty of late nights in school erasing what I had written and starting over in order to get it right. But now the challenge is: How do we cultivate enough courage to truly banish the idea that we have to get it right before we begin?
The urgency to take on this challenge hit me one day, far away from home. I was traveling with students in Nepal on a cultural exchange. At 12,000 feet above sea level, we made our way along a narrow path that wound through cultivated gardens and modest homes. We came around a corner and there was a young mother with three of her children walking towards us, carrying large bundles of firewood on their backs. When we met in the path, Jackie, the student in front of our small group, put her palms together and bowed low to the woman to greet her. “Is this right?” She called out to me, at the back of the line, while the young mother bowed back at her. Jackie never saw the woman’s wide, affirming smile, because she was looking back at me, seeking approval. She also never saw the children rushing to embrace her.
It’s not Jackie’s fault. She was used to a system that rewarded her for playing by the rules. It made sense that she was trying to make a good impression, but the moment made me wonder, “What are we missing in our effort to get it right all the time?” Real connection. Abundant joy. Balance. Creativity. Plus the chance to play more, to tinker and try things, to roll up our sleeves and be apart of the teams that are innovating to solve big problems with no single, right answer.
The world cannot wait while we sit alone at our desks, erasing and starting over, trying to get it perfect. The world needs us to iterate and to expand the limits of what is possible if we want to make change. The only thing getting in the way is that we get stuck trying to find the single, right way. We don’t know who we are and what we want sometimes, and how to move forward. The more clear and grounded we can get about ourselves, the more impact we can make. But we have to be willing to do the work of discovering who we are.
Here’s where I want to take your hand in mine and say, “Let’s go find a different way together.” Let’s practice being brave over perfect on a daily basis until we strike the match and follow the light, full of joy.
***