This is Kurt, Susie’s husband. The surgery is postponed indefinitely. This comes as a huge surprise to all of us.
Today Susie underwent a surgical procedure to do high-resolution mapping of the blood vessels in her neck. We had a similar procedure done in CO but the facilities here are much more powerful, so the surgeon wanted to repeat it here to help plan the operation. Today’s results indicated that surgery is not advisable at this time.
The two main facts supporting this are:
1) the tumor is not imminently dangerous now. Obviously we want it out, but it’s not urgent.
2) the blood vessels are actually still supplying critical blood flow around the tumor site. This was surprising to everyone and is exactly what today’s study was looking for. Over time, the body can reroute blood flow through other vessels and this is what everyone assumed had already happened. Today’s study showed that this isn’t fully the case. Therefore, there is more risk to the surgery.
Dr. Gokaslan decided to postpone the surgery because these two factors make taking the tumor now more risky than it’s worth. When we planned the surgery, we didn’t have the full picture of the risks. Now that we do, it’s a different situation, hence the different path forward.
Instead of an operation now, we will go back to close monitoring of the tumor (every 3 months). Susie may need to do this surgery in the future, but now we want to wait longer and see how things develop. We expect that over time the blood flow can reroute and reduce the risks in any future surgery Susie may need. We meet with Dr. Gokaslan tomorrow and will learn more details.
Susie was so hungry after today’s procedure (and foggy from the anesthesia) that she insisted we go straight to an Italian restaurant from the hospital. Never mind that she was in her pajamas. She joyfully ate enough for three people, and is now cozy in bed. She pivots easily, so is not too disappointed, just a little stunned.
We both feel grateful that our surgeon is bold enough to cancel a surgery when the risks are too high. And we are super thankful for your powerful, positive visualizations.
Susie’s mom, Lyn, and her brother Derek, are coming to town tomorrow anyway. We’ve decided to turn this into a celebration. We’ll likely spend a couple of days here before heading home. After we meet with Dr. Gokaslan tomorrow, we’ll share with you what we learn about what happens next.
Maybe we light the candles anyway, and visualize the tumor staying the size it is or shrinking, and therefore giving Susie a long and happy reprieve.
We cannot thank you enough. Your support has been incredible.